BOOKMARK | HELP

   LeoF             
 
OFFLINE
Male
73 years old
Southern NH,
United States

JOB: Retired
CANCER TYPE: Prostate
MEMBER SINCE: 02 Jul 2006, 12:07 am
LAST LOGIN: 01 Dec 2007, 10:43 am

Jazz, Blues, Classical, and Country

Mysteries, Adventure, History

"CARS" with my Grandsons




Diagnosed with Prostate cancer February 2002. Gleason Score 3+4=7. Had a Radical Prostatectomy June 2002 Boston's MGH (Dr Richie). All margins clear but PSA started to Rise after 10 months. Dana Farber Radiation Oncologist recommended Salvage Radiation (Big surprise) 36 sessions failed to slow PSA and probably did more damage then good. In March of 2004 discovered Prostasol which has worked well to keep my PSA under 1 at a reduced dose 10/week. Increased side affects, testosterone is low but still reasonable (over 250). Hormone Theropy would drive it close to zero and affect bone density and has been known to effect the cardio vascular system. I continue to look for longer terms solutions such as high dose vitimine D3 injections. When I go refractory I'll probably visit the Brysinski clinic in Houston or a clinic in Germany or Mexico. Seems traditional medicine in the US is committed to a one size fits all approach which isn't working for advance Prostate cancer. Don't look to the Big Pharma's to come up with cures. There's no money in cures. I worked for them and the current trend is to buy research (buy up small research companies) not do research. The Pharma's are getting out of the research business since its costly and affects the bottem line.

Golf, Fishing, Gardening

LeoF has 3 friend(s)



My Comments

16 Jan 2008, 11:51 am
Leo:
Thanks for the comment in my log.

I may try Prostasol one day. I've certainly heard a lot about it. Where do you get yours, and how much do you pay out-of-pocket?




25 Jul 2006, 7:34 pm
Leo,

You and I both have had to deal with unusually challenging cases, and you have had to think about some of the same issues I have faced.

I'm glad you are doing well on Prostasol. I had considered PC-Spes,which was kind-of the forerunner of Prostasol, but PC-Spes was going in the toilet business-wise about the time I was thinking about it, and I was already doing surprisingly well on hormonal blockade therapy. I've talked to a few guys on Prostasol, and they seem to like it. Is the Prostasol expensive? I really like my triple blockade therapy, but it is expensive. Fortunately, insurance covers much of the cost.

What were you told about the timing of the cancer becoming androgen independent (going refractory)? I've learned there are some highly unfortunate, pessimistic myths about that. Most patients who have heard dire forecasts will do far better, unless they had extremely advanced cases (such as widespread, painful bone mets).

There is a group, more like a movement of doctors treating prostate cancer that has risen above the "one size fits all" mentality that many doctors have. In this regard, have you heard about the national conferences on prostate cancer? Do you know about the "Primer"?

Take care,

Jim






From: Gorrigan
20 Jul 2006, 11:24 pm
What kind of blues do you like? I've been looking for a new CD. Reccomend one?




03 Jul 2006, 4:16 pm
Hi LeoF,

Thanks for such a concise recap of your history. Iím glad ProstaSol is providing a benefit. Iím sure there will be other prostate cancer patients on this site who will want to learn more about this.

I also completely agree with what you said about the one size fits all approach here in the U.S. There are now tests that are designed to determine which chemo will work on a patient before giving it to the patient (the chemo is tested on the patientís tumor cells first). But even this relatively small step in tailoring treatment has been summarily rejected by the American Society for Clinical Oncology (ASCO). The tests are available, but usually not recommended by most oncologists.

Michael





My Cancer Place